2005-07-19
Sorry for not updating the site recently. Honestly, the news has not been that great to report. After trying for many months to get into the special research program offered thru the University of Buffalo. We did get the final word that Lois would not be included. She just cannot move her arm enough to be a part of the study. In turn they did recommend a new type of procedure that might help Lois with movement. It is quite evasive and we are going to look into it much further before moving on it. The issue is a small pump that in implanted under the skin that then pumps medicine directly into the spinal column. This way the medicine does not go into the blood stream and make her so sleepy it just goes into the muscles and allows them to relax. We will speak to her neurologist about this and try to find some people who have had it done and see how it works for them. Lois was quite disappointed on the decision not to include her in the research program. Maybe we put too much emphasis on it as a vehicle for improvement. The heat here in Buffalo has been extremely hard on many and Lois is one of them. She did not have AC in other rooms of here home (just the bed room) so we bought a big window unit and installed it. Now it is more comfortable at her house. She did go swimming once at her neighbor’s home. Her personal trainer Frank took her into the water for some hydro exercise. Lois spent hours looking for a new bathing suit in catalogues. Some had to be returned and reordered. It was fun Lois reports and yet extremely exhausting. She slept the whole next day. One bit of new GOOD news is that suddenly Lois has regained the feeling in the right side of her face. She had not been able to even tell if food was pocketed in her right cheek. No real reason for this return. It just happened one day. Let’s hope it is a sign of improvements to follow. I promise to be better about update. A very busy summer here.